Our infant, one of only two in the world, was born with one eye and an ear positioned incorrectly.

As they travel from Wales to London for hospital appointments, the family of a kid who was born with a rare disease that left him without one eye and with an ear in the incorrect place has thanked everyone for their support. In November 2024, Bridgend residents Grace Ellis, 25, and Rhys James, 26, gave birth to their son Vinnie in Glangwili Hospital in Carmarthen. Vinnie was diagnosed shortly after birth with Goldenhar Syndrome, a rare illness that is thought to impact one in every 3,000 to 5,000 births, most of which are boys. Look below.

About The Author

Charlotte

I’m Charlotte, a writer and journalist with a passion for storytelling and delivering news that matters. As a new anchor, I combine my love for writing with my commitment to journalism, ensuring that I communicate important events and stories in a way that resonates with viewers. My goal is to inform, inspire, and engage through both my writing and on-air presence, always striving for clarity and professionalism in my work.

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